Join us
Join us for a magical night as friends, family, and community come together to achieve a cure for Annabel. Together, we can realize our dream of treating patients suffering from Annabel’s disease, and rewrite the future for thousands of other children whose lives could be transformed by gene therapy.
We are looking for champions to join us.
Sponsors
Nina and Simon Frost
Dream Makers
The John G. and Jean R. Gosnell Foundation
Champions
Susan Goldman
Heroes
The Alisann and Terry Collins Foundation
Friends
The Neuhauser Family
Bridget and Greg Nikodem
Occasions Caterers
Danielle and Matt Perl
Peggy Bourjailly and Noah Pollak
Jen and Rob Rathmell
Jocelyn and Brian Redman
Allison and Jamie Riepe
Annie and Mike Sabel
Natasha and Robert Schooling
Ashley and Clint Shaw
Jan and John Silliman
Chris and John Taft
Alanna and Ryan Temme
Caroline and Michael Van Vleck
Andrea and Alex Walker
Elise and Derek Whang
Williams & Jensen, PLLC
Jennifer and Michael Wood
Signey and Jason Adams
Elena and Robert Allbritton
Diana and Michael Allen
Mia and Tim Bass
Tina and Bill Belanger
Jill and Jim Bruno
Ashley and Brendan Burke
Beth and Michael Clifton
James A. Donohoe IV and Michelle Gallinger
Mary and Tom Firth
Katie and Steven Gewirz
Yardly and Burton Gray
Mae and Ande Grennan
Greysteel
Jeffrey J. Kimbell & Associates
Eli Lazarus
Alice and Michael Leiter
Chris Mario and Jim Schufreider
Corporate Partners
Host Committee
Thank you to our amazing host committee for its support:
Signey and Jason Adams
Sasha and Tom Adams
Elena and Robert Allbritton
Diana and Michael Allen
Matt Alion and Matt Blocher
Mia and Tim Bass
Nancy and George Balboa
Helen B. Bechtel
Farah and Jesus Bueno
Ashley and Brendan Burke
Lucia and Chuck Cassidy
Biffy and Chris Cathcart
Katarina and Thomas Charuhas
Ahna and Alexander Chip
Beth and Michael Clifton
Elizabeth and Octavio Delosobera
Jad Donohoe and Michelle Gallinger
Catherine and Will Ebert
Claire and Jake Farver
Catie and Connor Faught
Gena and Daniel Feith
Stefanie and Russell Firestone
April Jones-Firoozabadi
Nina and Simon Frost
Lisa Fuentes and Thomas Cohen
Amanda and John Fuisz
Jenny and Jonathan Fuisz
Lisa and Tim Garnett
Katrina and Steven Gewirz
Wendy and Peter Gowdy
Yardly and Burton Gray
Mae and Ande Grennan
Kate and Patrick Hanniford
Kate and Paul Harris
Kim and Nick Hayman
Conner and Brad Herman
Johanna and Barclay Howe
Louisa Imperiale
Kellyn and Jay Kenny
Julie and Reed Landry
Alice and Michael Leiter
Katherine and Brian Lucas
Kristen and George Lund
Mary and Patrick Maiberger
Diana Minshall
Anj Murphy and Jonathan Seigel
Andrea and Richard Nespola
Margret Nedelkoff and Jim Neuhauser
Bridget and Greg Nikodem
Sara and Peter O'Keefe
Katie and Peter Oppenheim
Megan and Andrew Parker
Mary Margaret and Scott Plumridge
Gretchen Randolph
Jocelyn and Brian Redman
Lizanne and Joe Reger
Jessie Regunberg and Garrett King
Katharine and Lindsay Reishman
Jimmy Reyes
Alison and Kai Reynolds
Allison and Jamie Riepe
Whitney and John Rosenthal
Helen and Dan Sale
Samantha and Justin Schneck
Alanna and Ryan Temme
Claire and Harlow Voorhees
Andrea and Alex Walker
Elise and Derek Whang
Annabel’s Disorder:
About AHC And The Gene Therapy Project to Cure it
Annabel has a rare and severe neurological disease called Alternating Hemiplegia of Childhood (AHC).
Every few days Annabel suffers from a day of painful, debilitating episodes similar to an epileptic seizure or a stroke. Over time, Annabel’s condition will lead to permanent brain dysfunction. Many AHC patients suffer an abrupt and irreversible deterioration, which leaves them unable ever to walk or talk again. In other cases, AHC causes a failure in the autonomic nervous system that can cause sudden, inexplicable death.
Annabel’s family, in close collaboration with the two national AHC charities, has assembled a team of nationally renowned scientists and doctors to pursue a cure for AHC. The team is pursuing a cure with AAV-mediated gene therapy, and testing one mice has begun. If the tests show evidence of a rescue in the mice, as the scientists anticipate, they will achieve the pivotal “proof of concept” to open the path for clinical trial in humans.
As the scientific team makes rapid progress, we need to provide them with the resources to move forward. Annabel’s disease is so rare—literally one in a million—that funding for research has been impossible to attain. Until now.
